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Clin Exp Pediatr > Accepted Articles
DOI: https://doi.org/10.3345/kjp.2019.00696    [Accepted]
Published online November 13, 2019.
Korean parents’ perception on the challenges and needs at school re-entry during or after childhood and adolescent cancer - A multi-institutional survey by Korean Society of Pediatric Hematology and Oncology (KSPHO) -
Jun Ah Lee1  , Jae Min Lee2, Hyeon Jin Park1, Meerim Park1, Byung Kiu Park1, Hee Young Ju3, Ji Yoon Kim4, Sang Kyu Park5, Young Ho Lee6, Ye Jee Shim7, Heung Sik Kim7, Kyung Duk Park8, Yeon-Jung Lim9, Hee Won Chueh10, Ji Kyoung Park11, Soon Ki Kim12, Hyoung Soo Choi13, Hyo Seop Ahn13, Jeong Ok Hah14, Hyoung Jin Kang15, Hee Young Shin15, Mee Jeong Lee16 
1Department of Pediatrics, Center for Pediatric Cancer, National Cancer Center, Goyang, Korea
2Department of Pediatrics, Yeungnam University College of Medicine, Daegu, Korea
3Department of Pediatrics, Samsung Medical Center, Seoul, Korea
4Department of Pediatrics, Kyungpook National University School of Medicine, Daegu, Korea
5Department of Pediatrics, Ulsan University Hospital, University of Ulsan College of Medicine, Ulsan, Korea
6Department of Pediatrics, Hanyang University College of Medicine, Seoul, Korea
7Department of Pediatrics, Keimyung University College of Medicine, Daegu, Korea
8Department of Pediatrics, Chonbuk National University Hospital, Jeonju, Korea
9Department of Pediatrics, Chungnam National University College of Medicine, Daejeon, Korea
10Department of Pediatrics, Dong-A University College of Medicine, Busan, Korea
11Department of Pediatrics, Inje University Busan Paik Hospital, Busan, Korea
12Department of Pediatrics, Inha University College of Medicine, Incheon, Korea
13Department of Pediatrics, Seoul National University Bundang Hospital, Seongnam, Korea
14Department of Pediatrics, Daegu Fatima Hospital, Daegu, Korea
15Department of Pediatrics, Cancer Research Institute, Seoul National University College of Medicine, Seoul, Korea
16Department of Pediatrics, Dankook University College of Medicine, Cheonan, Korea
Correspondence: 
Mee Jeong Lee, Tel: +82-41-550-3949, Fax: +82-41-559-7940, Email: lmjped@hanmail.net
Received: 24 June 2019   • Revised: 17 September 2019   • Accepted: 13 November 2019
Abstract
Background
For children and adolescents with cancer, going back to school is a key milestone in returning to “normal life.”
Purpose
In order to identify the support vital for a successful transition, we evaluated parental needs and the challenges they face when their children return to school.
Methods
This multi-institutional study was conducted by the Korean Society of Pediatric Hematology and Oncology. The written survey comprised 24 questions and was completed by 210 parents without an interviewer.
Results
Most parents (165/206) reported that their children experienced difficulties at reentering school, such as physical status (n=60), peer relationships (n=30), academic performance (n=27), emotional/behavioral issues (n=11), and relationships with teachers (n=4). Parents want to be kept informed about and remain involved in their children’s school life, and reported good parent-teacher communication (88/209, 42.1%). In parents’ perception, the proportion of teachers and peers displaying adequate understanding of their children’s condition was 83.1% and 55.9%, respectively. Most parents (197/208) answered that a special program is necessary to facilitate returning to school after cancer therapy, offering emotional support (n=85), improving sociality for school adaptation (n=61), tutoring to accelerate catch-up (n=56), and continued health care by hospital outreach personnel and the school (n=50).
Conclusion
In addition to scholastic aptitude-oriented programs, emotional and psychosocial support is necessary for a successful return to school. Pediatric oncologists should actively engage in improving oncology practices to better integrate individualized school plans and educate peers and teachers to improve health literacy to make them understand the needs of children with cancer.
Key Words: School re-entry, Childhood cancer, Parents




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